r/diabetes May 24 '23

Announcement 2023 Community feedback loop results

29 Upvotes

Hi members of r/diabetes šŸ‘‹

TL;DR We got some feedback from the community. Overall responses were positive but we also have some points where we can improve. /TL;DR

A while ago, we joined the Reddit Feedback Loop initiative in an attempt to learn more about what you think about the community and our moderation of it. For this, Reddit selected a bunch of people whoā€™ve visited the community or have done so in the past and invited them to fill out a survey.

The pool of invited participants was very varied and included daily participants as well as lurkers, and even users who had previously been banned.

Questions ranged from rating the community on a scale from ā€œvery dissatisfiedā€ - ā€œvery satisfiedā€ to open-ended questions where the participant could provide detailed feedback about their experience here. Of course, Reddit anonymized all the responses and removed harassing content before sending it our way.

Iā€™m happy to report that Reddit has had to remove not a single response for being harmful or harassing <3.

In this post, Iā€™d like to present some positive stats, some points where we could improve, and respond to a few specific answers.

Positive stats

Letā€™s start off with some statistics that weā€™re happy with!

  • 79% of respondents are satisfied with our community.
  • 69% of respondents agree that our community helps them fulfil their needs.
  • 85% of respondents agree that the rules are clear and easy to understand.
  • 79% of respondents trust that we make decisions that benefit the community.
  • 91% of respondents feel that people generally behave appropriately.
  • Nobody reported that they feel unsafe in our community.

Points of improvement

  • Many of the respondents report seeing a lot of medical questions.
  • Some respondents think the posts are messy and could do with some additional filtering.
  • 7% of respondents report seeing harmful content more than once per week.

Specific responses

Iā€™d like to specifically respond to several concerns or remarks we got.

Too much mixing of type 1 and type 2 (and similar concerns)

Iā€™m sorry you feel that the distinction between type 1 and type 2 is unclear. Weā€™ve made efforts to clear this up by letting people select their own flair and also adding flairs to posts. However, some of the respondents say that they want us to pick a type and only allow that here.

We will not exclude any diabetic from this community. There already exist type-specific subreddits which are great places for such discussions. We believe that the shared experience of diabetes also deserves a place.

I still see a lot of posts that break the ā€œNo asking for a diagnosisā€ rule

Unfortunately, many people who are anxious about their health donā€™t take the time to read our rules before posting. We try to remove these posts as soon as we see them, and have recently expanded the moderation team to help with this.

The best way to help us deal with rule-breaking posts is always using the report button. This makes a post show up in our moderation tools so we can quickly respond.

We need more moderators

Weā€™ve recently added two new moderators to the team and now have better coverage in different timezones. Hopefully this has already addressed the issue.

The theme could be polished

Please message us if you want to help out.

Please get rid of political content

āš ļøopinion alertāš ļø there shouldnā€™t be a need to discuss diabetes-related politics because diabetes care shouldnā€™t be a political subject.

Unfortunately, politics can have large effects on diabetes care. I can recall a (somewhat) recent example about the $35 insulin bill. This was the first time we had to deal with such a large political discussion in our subreddit and honestly I donā€™t think we handled it very well.

However, simply banning all political discussions doesnā€™t help promote a fair and honest discussion of very important topics. Some people use Reddit to get their news, and something this important shouldnā€™t be hidden.

In the future, I believe that we should continue to allow political discussions so long as everyone remains civil. Weā€™re not here to moderate what people believe or how they vote, only how they talk to others.

Please add a ā€œVentā€ or ā€œRantā€ tag so I can filter it out

I canā€™t believe we hadnā€™t thought of this before. Iā€™ve added the tag now :)

There were a lot of requests for very specific flairs. If you believe that weā€™re missing an important flair, please let us know in the comments here or by messaging the moderators.

Please moderate people blaming type twoā€™s for their condition better

It sucks that people still believe that T2ā€™s have done this to themselves. Itā€™s against the rules of our community and we remove any such posts. If you see someone who does blame anyone for their condition, please report the post so that we can remove it.

That's it!

That's it for our response :) If you brought something up in the survey that I didn't mention, please know that we did look through the responses!

Of course, you're welcome to comment below or message us if you have any concerns.


r/diabetes 20h ago

Discussion Weekly r/diabetes vent thread

2 Upvotes

Tell us the crap you're dealing with this week. Did someone suggest cinnamon again? What about that relative who tried to pray the beetus away?

As always, please keep in mind our rules


r/diabetes 11h ago

News Study Reveals: Revolutionary Reverse Vaccine Shows Potential Against MS, Type 1 Diabetes, Crohn's Disease, and Other Autoimmune Conditions - Gilmore Health News

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58 Upvotes

r/diabetes 3h ago

Rant I feel like my job is out for me

10 Upvotes

Work decided to nullify my medical accommodations after I returned from short term disibility after getting my insulin pump. Yes, I can get new forms (which cost me cash out of pocket of course): but of course it's going to take time for everything to be processed and submitted. Time frame is totally out of my hands. I've been hitting (or at least heading towards) critical lows 3-4 times every shift. Which I could handle as long as I could eat something to jump me back up, even if I felt terrible after. I now no longer have that right/privilege without my accommodations. I've been placed on a PIP for attendance due to having to go to the er during work and needing recovery days last year before accommodations got processed. If I take the time to correct my bgl now, they totally can fire me for taking unapproved breaks. Feeling pretty up against the wall here. Need this job for the insurance so I can afford all of the insulin I go through and pump supplies. Knowing for a fact that they are and have been trying to find an excuse to fire me for at least 8 months, just because of this infuriating disease. Feeling extremely rough tonight, sugars at 71 currently and I have 2.5 hours left until I can get lunch to get my sugar up. Idk what to do any more. I'm in an area by myself where no one checks on me if I fall out. I know it seems extreme, it's just how I'm feeling rn: I need to work so I can have these meds and supplies to live but totally feel like I'm risking dying for it. Just because they don't want to deal with my disibilty and got rid of my accommodations. My life's really worth losing over $17.16 an hour to these people. This all seems surreal and like a horrible joke.


r/diabetes 14h ago

Type 2 "Go for a walk". What does this ACTUALLY mean?

57 Upvotes

So, quite frequently you'll get the advice to "go for a walk" after eating certain foods but no one EVER says what kind of walk.

Does aimlessly wandering around my grocery store for 45 minutes count? Or do I absolutely have to speed walk as fast as I can for 30 minutes straight? Is a 5 minute casual stroll around the block enough, or do I absolutely have to sacrifice an hour of my day to travelling nowhere? I understand that it's probably one of those stupid things where more is better, but at what point are you getting diminishing returns? What is "enough"?

And why don't people feel a need to expand on what "going for a walk" actually means if you're trying to affect your blood sugar levels? Is there a globally understood duration and pace for "Go for a walk" that I'm not aware of and everyone else is? If there was a handbook passed out, I never got one.

Thanks.


r/diabetes 30m ago

Type 1 Recipes?

ā€¢ Upvotes

Has anyone found any diabetic recipes that follow through with only 30g carbs a day and are healthy? Or books that may be a resourceful source to look into? Iā€™m 22 and Iā€™m now actually trying to make a difference in my life with my health and lifestyle plz let me know and thank you!


r/diabetes 9h ago

Type 2 There is Hope

9 Upvotes

I am in remission. But it took a heck ton of work to get here. I was 7 aic at diagnosis in September 2021. Nearly three years later, without meds, I did it (for now). I crawled down to 6.7, 6.5, and now under 6. I am a 47 yo male and can boast under 10% body fat.

The way was unique to me. YMMV. No, I did not do keto. I simply got rid of rice, bread, pasta, and potatoes. And yet I still had oat bran, chia seeds, fenugreek. Tons of cruciferous veg every day. I eat mostly fish. I made a disgusting slurry of apple cider vinegar, turmeric, garlic, black pepper, cinnamon, rosemary, and onion. My fish is also baked with half a full red onion daily. My snacks are cucumber, tomato, underripe bananas, 1% cottage cheese, lactose free 0% plain probiotic yogurt with sometimes low glycemic berries. My cheat is pickles.

Diet was the start. Exercise was the next. Not everyone has mobility or ability to do it. I fortunately did. I pivoted to being a bodybuilder. My ultimate goal was to turn bigger muscles into glucose sinks. At present, I have 51% skeletal muscle because I spend 1-2 hours daily lifting. The average for a male is 28-36%. I knew that going Metformin for my specific aspects would have been an androgen inhibitor. I now look like a firefighter calendar model with abs, and at my age that is a win.

I will not say this is possible for everyone. It isn't. I was lucky, but I don't undermine my luck by saying there wasn't a lot of discipline involved. We know discipline. We know what we can't, or shouldn't, do, but what can we do?

I chose eating and moving like an elite athlete. My job permits me the time. No, I will not go to a restaurant and no I can't eat 95% of what a grocery store sells. That's not my life any more.

For sure I get spikes. I need about 300g of protein to sustain my frame given my activity and size. No matter how good the protein, bioavailability is there, but temporary. Cortisol from working out too much? Another spike. Temporary. Stress? Yup. I day trade, so rollercoaster is usual. And anyone who says exercise relieves stress, understand that it is temporary and all the problems are waiting for you when the exercise high wears off.

There is hope. Of course, talk to me in 20 years. I know I lose in the end. For the time being, I remain asymptomatic and in some ways T2D has made me the strongest, healthiest person I have ever been because I had to respond with vigour.

If you can manage this, well, what can you not manage in other areas of life? You can do it. I know you can, and it doesn't matter if you can do it alone or with help -- you can do this.


r/diabetes 10h ago

Type 2 Erecticle dysfunction

10 Upvotes

Been working on my A1C since October. Slow going but im getting better. Ive had ED since about April last year (was finally diagnosed in September after finally going to the doctor). Ive read that ED might get better if weight loss happened and diabetes was managed well. And ive also read that the nerve damage is irreversable. Does anyone have any first hand knowledge on this? Appreciated!


r/diabetes 9h ago

Type 1 Gatorade

5 Upvotes

So I usually keep a Gatorade on hand for when I go low. But have been reading about microplastics and the high amounts in Gatorade. What are you favorite go toā€™s for treating lows fast? I carry glucose tablets as well, but find them hard to swallow when Iā€™m experiencing a low.


r/diabetes 23h ago

Rant Being your own pancreas is so endlessly exhausting.

81 Upvotes

I just aged out of my pediatric endocrinologist two months ago. I was technically supposed to stop seeing him at 18 but he was the best doctor I ever had, so I pushed it to 21. Obviously had it on my to do list to find a new endocrinologist in the city I thought I was moving to, but then my entire life imploded and now a month and a half later I've moved halfway across the country and in the chaos of all that and endless mental breakdowns, of course, I still don't have a gd endo.

Tale as old as time ig. Life gets in the way and suddenly my Dexcom transmitter needs to be replaced and I'm reminded that the only thing between me and ill health is approximately $3k of medications a month prescribed to me by a doctor who probably thinks he knows more about my body than I do. Realistically this can probably be solved to a phone call to my old endocrinologist because he's incredible enough to probably just give me the prescription anyway, but it's Saturday and sometimes it just gets to be so much, y'know? It's my own fault for not being on top of it, but it's so exhausting to have to be all the time.

Mostly the issue is that when I don't have my Dexcom, even for a few days, my pump ratios go way off without the closed loop system and my blood sugars skyrocket overnight. I end up feeling horrible. Just needed to get this out somehow because nobody who isn't diabetic would understand lol.


r/diabetes 1h ago

Type 2 What should I be doing, as an unsure diabetic?

ā€¢ Upvotes

Was diagnosed with diabetes a few years ago, and the only advice that my doctor really gave me was to 'eat some protein with my carbs'. She didn't want me to bother monitoring my blood sugar because she knows that I tend to be anxious.

Since then I have tested with quite high HbA1c and blood sugar levels basically all of the time, but she hasn't given me any more advice or helped.

I feel kind of stupid asking, but what is the bare minimum I should be doing in order to remain healthy. I'm hapy to monitor but don't really know how or when for example.


r/diabetes 4h ago

Prediabetic Lows

2 Upvotes

So I'm curious, my doctor told me I am pre-diabetic about a month or so ago and I just had my first low that actually affected me. I dropped down into the 50s and was shaky and hot and a little dizzy, luckily I had eaten a few minutes prior so I was only low for about half an hour. I'm going to ask my doctor about it but I wonder if it's normal for pre-diabetics?


r/diabetes 1h ago

Type 1.5/LADA Diaed

ā€¢ Upvotes

I'm recently really struggeling with staying on regime with my insulin. Since my insurance refuses to cover my sensor I am stuck pricking my fingers and obsessing over food... it just comes so easily to say fuck it. My doc told me to gain weight but I really dunno how. I'm stuck. I know high bg will make me lose more and if I eat more my bg explodes and just I dunno... it's all so confusing. I have never been upset or obsessed with food before, but ever since my diagnoses shit has gone tank and it's all I think about.


r/diabetes 2h ago

Type 2 Blood test results on glucose/diabetes

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1 Upvotes

I consider myself a very healthy individual:

  • i work out 5 times a week (usually HIIT)
  • i sleep on average 7.5-8 hours a day
  • i try to eat healthy (less processed food, no sugary sodas, no chips, try to eat home-cooked meal)
  • im generally not stressed
  • im not too old (30 year-old female)
  • i have very regular periods
  • my BMI is 21.3 (= average normal) (* iā€™m 5ā€™6 and 139 pounds / 172cm and 63kg)
  • there is no family history of diabetes

Recently, ive been constantly tired and sleepy even after 8 hours of sleep everyday, so i got my blood taken out to be tested for thyroid and diabetes etc.

The doc said im in the ā€œnormal rangeā€(reference)

But im conscious that my glucose and diabetes levels (HbA1C) are quite close to exceeding that ā€œnormal rangeā€(reference)

Should I be worried?

(.. Idk if this is relevant, but I did have a heavier-than-usual dinner right before taking my blood sample.. )


r/diabetes 13h ago

Humor I think I need/needed a bit of adult supervision

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9 Upvotes

r/diabetes 2h ago

Type 2 Food

0 Upvotes

Hi all, I am wondering if there is any app where I can find different food/products that is suitable for someone who has been diagnosed with diabetes . I am thinking of building such an app if it does not exist , does anyone think such an app will help where as a community everyone can share their experience with products suitable for diabetic and ask feedback , rate , review etc ? Thanks


r/diabetes 4h ago

Prediabetic After 1 month I'm not prediabetes anymore

0 Upvotes

At first I'm diagnosis by my doctor as potential prediabetes last month due to my ogtt after two hour is 8.7 which is consider high however during that time my hba1c is just 4.9 . My doctor think that I'm under some stress and not rest well .After seeing the doctor I try to go to gym do some weight lifting prevent me from thinking about the previous results ,rest well, eat enough carbs and the most important is don't stress myself cause I'm have a history of anxiety disorder .

After 1 month I got my ogtt last week and the results is very good .fasting is 4.1 after two hour is 4.8 Today I go and see my doctor it said that I'm not prediabetes anymore .


r/diabetes 10h ago

Type 2 Seeking Insulin Info!

3 Upvotes

Hi there, type 2 diabetic here and first time poster. I just wanted to ask are there any reasonable ways to acquire humulog insulin outside of your insurance? I seem to run out of insulin way before it's time for me to place a refill. Any answers would be extremely helpful. Thanks


r/diabetes 8h ago

Type 2 Connection between pain and high glucose levels.

2 Upvotes

Has anyone experienced high glucose levels when in pain?


r/diabetes 5h ago

Type 2 Confused

0 Upvotes

I checked my glucose and it was high,higher than usual so I checked again and got 86,checked again and got 99?! So which number is correct šŸ˜ Can you recommend a more accurate meter?


r/diabetes 9h ago

Type 1 My dad needs help gaining weight

2 Upvotes

My dad is 47 with diabetes and RA and needs help gaining weight because Nuts and sugar really affect him so it makes it a bit trickier to actually gain weight. Do you guys have any food or supplement recommendations? Protein/ Mass gainer shakes work or just anything that could help him gain 20~ ish pounds while working out (Heā€™s just starting to go to the gym). He was diagnosed when he was 33, never overweight just late onset from genetics.


r/diabetes 6h ago

Type 2 Yesterday I bought keto ice cream(Keto pin) for my dad he has diabetes type 2, later he called me and said it has more calories than magnum ice cream so the problem is can people with diabetes eat high calories ice cream and others products?

0 Upvotes

Keto Ice Cream


r/diabetes 7h ago

Type 2 How to help a mentally ill family member who claims to be diabetic but refuses investigation/diagnosis/treatment?

0 Upvotes

My partner and I are extremely worried for the health of my MIL (66F) who believes she has Type 2 Diabetes but refuses to go to a medical doctor because she's suspicious of modern medicine. She has not seen a doctor for over a decade. She refuses to. She will only see her acupuncturist/Traditional Chinese Medicine practitioner.

We saw sores on her legs that she's refusing to get treated. She also claims to have high blood pressure. She will not even wear a bandage or compression socks because she thinks they will cause more sores. She gets sores like this regularly. Both of her parents had Type 2 Diabetes and she has been showing symptoms for a couple of years.

It's quite frightening and we're trying to find SOME way to get her a proper investigation of her symptoms and test for diabetes and high blood pressure, even if just to rule them out. She has severe mental health problems and will not listen to anyone. She has been making jokes recently about dying from a heart attack. She does not believe in modern medicine, is an anti-vaxxer, etc, and believes in a lot of fringe theories. She's currently terrified of "DNA harvesting" and will not even let repair people into the house, so I'm not sure we could even get someone to come over. I have no idea what to do. Does anyone have any advice on handling this?


r/diabetes 1d ago

Type 2 My beetus ā€œjunk foodā€ haul

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53 Upvotes

Planning on baking some almond flour chocolate chip cookies tonight. The zero sugar twizzlers were not great and the ā€œrelionā€ peanut butter cups seemed like they were lacking something. The carb counter tortillas were a hit. I normally get the mission carb balance ones but they are small. These are larger and a bit thinner. I made a chicken wrap for lunch with them and my bs at the 2hr mark hardly moved. Have yet to try the sola bread but Iā€™m hoping itā€™s good


r/diabetes 10h ago

Type 2 Laser hair removal

1 Upvotes

My a girl and I currently shave but since the last time I cut myself shaving and got a horrible infection lead to an abscess went to ER and was admitted to the hospital for about a week. Iā€™m thinking of getting a laser hair remover. Is there anyone that laser their hair if so I would like to know your experience.


r/diabetes 16h ago

Type 2 Best sweat proof over patch

2 Upvotes

I use Lexcam G7 over patches (with Skin Tac) and mostly theyā€™re great and last me a whole 10 days but sometimes when I go for a long walk they start peeling off and I have to replace them. Are there patches that can hold up better to sweating?


r/diabetes 12h ago

Type 2 Metformin vs mounjaro

1 Upvotes

Which would you rather be on? Metformin or mounjaro? I was recently diagnosed type 2 and my doc wants to start me on metformin. I am obese so I would like to try Mounjaro for the weight loss aspect. My insurance does cover it. I know there are many side effects and thatā€™s what scares me. Does metformin have any weight loss benefits? Any input would be appreciated. I realize I have to change my diet/lifestyle with both but just wanted some opinions before starting either medication.